Patient & Caregiver Resources
Information for Patients:
ASCO (American Society of Clinical Oncology)
ASCO’s mission is to improve cancer care and prevention. ASCO is dedicated to advancing the education of oncologists and oncology professionals, advocating for policies that increase and provide access to high-quality cancer care, and supporting increased clinical and translational research to improve the care and treatment of people living with cancer.
Founded in 1944, CancerCare® is the national leader in providing professional services to help people manage the emotional and financial challenges of cancer.
GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients
Oncologist-approved cancer information from the American Society of Clinical Oncology.
Caring Ambassadors Lung Cancer Program
The Caring Ambassadors Lung Cancer Program works daily to:
- address the informational needs of people living with lung cancer and their loved ones
- provide compassion and support to those facing the many challenges of lung cancer
- increase lung cancer awareness to augment the priority of lung cancer on local, state, and national health agendas (both public and private)
- bring hope to families living with lung cancer
International Association for the Study of Lung Cancer
IASLC members work to enhance the understanding of lung cancer among scientists, members of the medical community and the public. IASLC publishes the Journal of Thoracic Oncology, a valuable resource for medical specialists and scientists who focus on the detection, prevention, diagnosis and treatment of lung cancer.
Journal of Clinical Oncology Lung Cancer Portal
National Cancer Institute
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
National Comprehensive Cancer Network
The National Comprehensive Cancer Network (NCCN) offers guidelines for patients with Non-Small Cell Lung Cancer as well as other diseases. They aim to provide people with cancer and the general public with state-of-the-art cancer treatment information in easy-to-understand language. The guidelines are meant to help patients with cancer talk with their physicians about the best treatment options for their disease. NCCN Guidelines for Patients do not replace the expertise and clinical judgment of the physician.
Information about Hypertrophic Pulmonary Osteoarthropathy (HPOA)
"Although it’s uncommon, hypertrophic osteoarthropahy, or HPOA, is an odd and therefore memorable syndrome that can be a side effect of lung cancer. It features an abnormal proliferation of skin and bone tissue, primarily in the hands and feet. Patients can develop clubbing, which is most commonly associated with NSCLC (up to 1/3 of patients) more than SCLC (only about 5%), and adenocarcinoma in particular." - Dr. West, Cancer Grace
Read More Here or Here
Information for Caregivers
Family Caregiver Alliance
Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.
CAREGIVERS (Association of Cancer Online Resources)
ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders.
Guide for Cancer Supporters: Step by Step ways to Help a Relative or Friend Fight Cancer (book)
Resources for all Caregivers from the Mesothelioma Cancer Alliance