Lung Cancer Initiative was pleased to be a part of the First National Summit on Lung Cancer Stigma held on February 26 and 27 in Atlanta. Convened by National Lung Cancer Roundtable (NLCRT), the goal of the summit was to organize and build momentum for a sustained effort to end lung cancer stigma and its adverse impact on lung cancer care and outcomes across the lung cancer care continuum. Given the evidence demonstrating the toll of stigma on lung cancer risk reduction, early detection, treatment, and survivorship, there is a clear and convincing need for a strategic plan to establish coordinated national and local efforts to confront and eliminate lung cancer stigma in every setting and in every form.
More than 65 summit participants represented 42 organizations, including lung cancer survivors and caregivers, cancer clinicians and researchers, patient advocacy organizations, professional medical societies, government agencies, and pharmaceutical companies. Attendees shared their experiences and knowledge, as well as initial ideas for ending lung cancer stigma. The program began by creating a common understanding of the history and current status of lung cancer related stigma across the care continuum. Lung cancer survivors, caregivers, and clinicians, first shared personal stories, with each discussing their personal perspectives on lung cancer stigma. The session concluded with an overview of the evidence on how lung cancer stigma influences patient care and outcomes. With lung cancer survivors and advocates integrated across all discussion groups on day two, attendees engaged in extensive dialogue regarding the central issues that must be addressed. The summit concluded with a strong commitment by the participants to work towards eliminating lung cancer stigma by banding together and generating a blueprint for reaching that goal. The NLCRT and summit participants will continue to organize efforts and will propose a comprehensive strategic plan to end lung cancer stigma at the 4th annual National Lung Cancer Roundtable meeting on December 7-8, 2020 in Washington, DC.
A video summary of the Stigma Summit can be found here.
The American Cancer Society established the NLCRT as a national coalition of public, private, and voluntary organizations and invited individuals, dedicated to reducing the incidence of and mortality from lung cancer in the United States, through coordinated leadership, strategic planning, advocacy, and action. The ACS and the NLCRT’s Lung Cancer Stigma Summit Planning Committee would like to thank AstraZeneca, Genentech, Amgen, and Bristol-Myers Squibb for their support. For additional information about the NLCRT, please see nlcrt.org.